MRSA Discussion Forum USA and Canada |
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had mrsa- long term complications?
Started by matt |
Posted: June 6, 2005 at 21:06 | |
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Does anyone know of any longterm complications that can be expected from an MRSA infection? I had an infection for a month. I have had boils off on and since Dec 05. I didn't know I had MRSA until I went to the Dr. after I had an infection in lymph nodes and was having ear aches, head aches, and anxiety.I have been perfectly healthy all 31 years of my life. My antibiotics are finished and lymph nodes all better but I seem to have very very slight pain in my ear very occasionally. I also get little twinges around my sternum. I am not sure if I am just scared now or If I have a lingering problem. I also have a problem with my cornea now that I will be seeing a specialist for tommorrow. I suspect the cornea problem may be related to the MRSA. 873
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Re: had mrsa- long term complications?
Reply #1 by Denise |
Posted: June 7, 2005 at 01:33 | |
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Matt - There are longterm complications that may occur from having an MRSA infection. Or you may never have another episode again (hopefully). When my younger daughter had MRSA infection in her ears, she used to get some other symptoms also. She had discharge from her eyes and sometimes in her genital area. The doctors told me it sounded normal, but after she was successfully treated for the MRSA, those symptoms disappeared. My experience here in NY has been that not enough current information is available, even for doctors. This problem with healthy people being infected with MRSA is a growing concern in our country. Tony Field, the Chairperson of the UK group, is planning a trip to the USA to help raise awareness about this problem. I know he will be speaking in NY, on LI. If you are near here, you can e-mail me at drej424@yahoo.com and I'll give you the details after plans are confirmed. I hope all goes well for you tomorrow. 876
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Re: had mrsa- long term complications?
Reply #2 by Carmen |
Posted: June 10, 2005 at 21:02 | |
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I have been diagnosed with MRSA and also have had the headaches, lymph swelling, discharges, earaches, the list goes on. Though the doctors say none of this is caused from the MRSA, which as far as I know began with 1 boil. I have to wonder why every doctor I have seen so far tells me all the other symptoms could be caused by a "bug" and it's not a sign of infection spreading. It's good to hear that awareness is being raised about this. I hope some help comes soon. I am pretty much out of options. 886
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Re: had mrsa- long term complications?
Reply #3 by shannon |
Posted: July 14, 2005 | |
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hello matt I also am a healty 30 year old female never been in the hospital I was woundering the same things you are if you want maybe we can put our resourses together and find an answer...shannon hotgirl651@hotmail.com 999
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Re: had mrsa- long term complications?
Reply #4 by Michelle |
Posted: July 14, 2005 | |
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I got MRSA after getting a tattoo. My Primary Dr had no idea what was wrong with me and it took 8 weeks for him to finally take a culture from one of my many open holes that developed on my leg. I missed two months of work. Got tattoo in March 2004, sick within two weeks and still having outbreaks to this day. Any suggestions? I take Bactrim and Muropricin and wash with Phisohex. My Infectious Disease Dr said I will have this for years. 1000
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Re: had mrsa- long term complications?
Reply #5 by Denise |
Posted: July 14, 2005 at 02:03 | |
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Michelle - There are some great websites with a lot of helpful info. One is www.caercoork.com. Another is www.mrsaresources.com. If you'd like to receive a copy of Tony Field's booklet, "MRSA - A Patient's Defence", you can send your postal address to me at drej424@yahoo.com. Some people do get the infection over and over, but not everyone. It seems that strengthening your immune system to stay as healthy as possible makes a difference. Try to learn as much as you can. 1001
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Re: had mrsa- long term complications?
Reply #6 by mscollom |
Posted: July 29, 2005 at 05:38 | |
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I have had the symptoms since 2003 . I have found taking garlic,daily in the oderless tablet form at least 7200units a day helps . I also take a teaspoon of cinnamon with a teaspoon of honey mixed with a tablespoon of olive oil a day . this also helps and so does Thyme tea ,1 TBLspoon steeped in a cup of hot water ,let cool,strain out leaves and drink these are spices most of us have in our kitchen. Black walnut is also another thing I take but not all the time I take it for a week or two and then wait a couple wks and start it over. MSM 2 a day & , cayenne fruit capsules 2 a day, is another good one that I take plus multiple vitimins and minerals and Noni juice at least an ounce a day more if you can afford it. These are things the doctors won't tell you because they get paid for administering drugs. I use olive oil on my skin after each bath if I am not going out somewhere. I have found that 1/2 white vinegar,1/2 rubbing alcohol helps the itching ,then put on the olive oil or use vaselene or petroleum jelly this keeps skin from being dry and helps to cure and keep down itching. Rubbing raw onion on sores also helps to cure them ,the onion has iodine in it and it smells bad but it works and costs little. try these things, I have and they really do help. I have taken many drugs with this stuff and it seems home remedies work as well. The doctors have told me I seemed to do as well as them to treat myself. I got tired of the symptoms and not having any relief so I started going to health food and homeopathic stores and researching on my own and trying things. You would be surprized at the results. I take flax seed oil capsules this helps too and biotin and inositol these are good for hair and skin. the flaxseed oil is a good supplement to take also if you can not afford Plavix to keep blood platets from making clots. Plavix costs so much I couldn't afford it so researched and found the same effect came from flaxseed oil and costs about 10.oo a month from drugstore ,even Wal-Mart carries it. I told the doctor about it and she agreed about it. Dr.'s get paid for pushing drugs by the Pharmacutecals companies. They only treat symptoms and do not cure the problem to keep you coming back . you can do that yourself with home remedies. 1028
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Re: had mrsa- long term complications?
Reply #7 by Denise |
Posted: July 31, 2005 at 14:09 | |
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mscollom - Would you mind posting this on the www.mrsaresources.com website? There are so many people in our country suffering from these repeated outbreaks on their skin. Some have no health insurance and in families where the adults get it, it can be financially devastating. Any suggestions about how to reduce the number of recurrences would be of great help. Thanks! 1033
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Re: had mrsa- long term complications?
Reply #8 by Matt |
Posted: August 1, 2005 | |
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I started this thread so here is an update. My corneal scraping came back ok. I was reading somewhere that MRSA may not show in a scraping though but could be in the eyelid. Anyhow No cancer, fungus etc. The doc wants to see me again in 4 months. I am still concerned but thankfull to have sight! Bad News- I am now having pins and needles throughout my body. More like just little pin pricks here and there but everywhere and constantly. Not really painful just annoying. This has been occurring for 2 weeks. I am thinking of going to see a neurologist. It feels like my nerves are just kind of firing off. I am thankful the pain is negligible however I am hoping it doesn't worsen. I may start a new thread on the pins and needles as I am curious if anyone else has experienced this. 1034
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Re: had mrsa- long term complications?
Reply #9 by bikerbabe |
Posted: August 1, 2005 at 08:07 | |
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hi matt. I'm from the uk. Since my bike accident two yrs ago i've still got mrsa, my long lasting effects are loss of weight, lack of energy, i too have pins and needles that shoot through my legs and arms, but not all the time, i've come to cope with it over the time i've had these problems, but the pain has not worsened. Good luck. bikerbabe 1035
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Re: had mrsa- long term complications?
Reply #10 by sonia |
Posted: August 11, 2005 at 22:02 | |
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my husband has MRSA and is awaiting a liver transplant at this moment in time it nearly claimed his life on sunday 7 august it needs adressing by MR enjoy your holiday Blair yesterday! 1088
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Re: had mrsa- long term complications?
Reply #11 by sonia |
Posted: August 11, 2005 at 22:03 | |
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my husband has MRSA and is awaiting a liver transplant at this moment in time it nearly claimed his life on sunday 7 august it needs adressing by MR enjoy your holiday Blair yesterday! 1089
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Re: had mrsa- long term complications?
Reply #12 by Vicki |
Posted: August 12, 2005 at 21:31 | |
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Sonia Support your husbands liver with just one drop of good quality Milk Thistle tincture in water twice daily. It is a brilliant herb for regenerating liver tissue. It is certainly worth a try. 1096
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Re: had mrsa- long term complications?
Reply #13 by matt |
Posted: August 24, 2005 at 22:48 | |
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Another update. I now have muscle twitches all over in addition to my pin prick feelings I was having. I am seeing a neurologist who ordered an MRI and an infectious disease specialist next week. I don't knwo if all this is from MRSA or an immune system problem. I didn't have any of these symptoms until after my infection though. Is there anyone who is having nervous system problems after their infection? 1194
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Re: had mrsa- long term complications?
Reply #14 by Shelley |
Posted: August 25, 2005 at 02:27 | |
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I have had mrsa for four years now. I have neuropathy in both feet and they think it is caused from the Zyvox I took for the mrsa. They are numb in places and burn and itch at times and are freezing at other times. I see a neurologist and take neurontin (2700mg) a day, along with clyndamicin, 300mg 4 times a day. So it just seems to go on and on. I hope for the best for you. I wish they could come up with something for us with mrsa. 1195
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Re: had mrsa- long term complications?
Reply #15 by matt |
Posted: August 30, 2005 at 22:43 | |
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Shelley, I too took Clyndamicyn. I take nothing now. My Dr. says MRSA is all cleared up and gone. Do you think MRSA stays in your system? You say you have MRSA for 4 yrs. What do you mean 4 years? Are you talking colonization, just boils or some other pathological clinical diagnosis? Your help is appreciated. 1217
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Re: had mrsa- long term complications?
Reply #16 by Denise |
Posted: September 1, 2005 at 16:41 | |
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Matt - Have you been in touch with Christina Jones from MRSAResources? I know her husband has some of the neurological difficulties you are describing. 1228
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re-occurences/colonization
Reply #17 by Rachel |
Posted: September 13, 2005 at 18:50 | |
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matt, I have the same question you do; I hav mrsa and am taking Clindamycin now. It seems to be getting better but my father has had 3 reoccurences and I am worred about whether or not it stays in my system. I have learned that a person can become colonized in moist places on their body (nose, arm pits, groin) and that sometimes is how people become reinfected if they don't know about it. But how do you know it's gone from inside your body or if it just lives on your skin? Rachel 1270
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Re: had mrsa- long term complications?
Reply #18 by Debby |
Posted: September 14, 2005 at 02:57 | |
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You said you had a problem with your cornea. Can I ask what it was? My daughter is having a problem with hers. Thanks Debby 1271
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Re: had mrsa- long term complications?
Reply #19 by Peg McQueary |
Posted: September 16, 2005 at 01:31 | |
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My Story: Hi Everyone, Thank you so much for this forum, its the best MRSA outlet we have. My story... I'm a 40 year old female, active, happy, married 23 yrs to the same wonderful man that I met while in High School, we have (2) teenagers who are simply awesome and we (HAD) a very full/active life until January of this year (05'). Over the last year I've had trouble with cellulitis, one on my face, two on my hip & one on my shoulder. All have been successfully treated with IV (Cephazolin) until the one on my leg that came about from a shaving nic on my ankle. I cared for this nic as I would any other, antibitoic ointment, covered and kept clean with a regular bandaid. No signs of infection until my leg started to hurt, then it became 3 + times it's normal size from swelling. I have a wonderful Doctor (Internal Medicine) who see's me at the drop of a hat due to previous cellulitis infections. I called him and was in the next day. This was January 12th. 2005.. He took one look at me and my leg/thigh/hip and said "Peg, I'm sure this is MRSA and I must put you in the hospital immediately." That was the start of my MRSA horror story. I spent 4-days in the hospital (isolation) with vancomyacin running via I.V. One the second day they inserted a PICC-Line IV, thank goodness for that because it was killing my hand/vein. My husband and I begged the Doctor in the hospital to drain it, but he refused! I was pretty upset knowing it would heal much faster and get the bad stuff out in the process. He only said "we wont for cosmetic reasons!" HUH? Okkkkk, go figure! I spent the next 5 weeks on home infusion w/ vancomyacin. As with everyone who has experienced or had MRSA, I was SURE I would die, actually I was afraid that I wouldnt die, yes that is how bad you feel and how sick you truly are with this stuff. Anyway, my Doctor gave me a referral to a Infectious Disease Doctor who has put me on lifelong oral antibiotics, I use Phisohex to cleanse my skin and am VERY cautious with bug bites, scratches, cuts and even being out in public. I'm a "waterless/antibacterial cleanser" junkie! ha ha. Since the infection I've been battling severe fatigue and on-going problems with my leg and hip. I've had 2 Ultrasounds done to rule out DVT, both clear, and several x-rays taken of my hip. As of this writing: Sept. 15th, 2005 I'm currently waiting for a MRI and vascular surgeon appt. because of the continued swelling and pain within my leg and hip. While the fatigue (apparently common after this type of infection) has eased abit, I still struggle to do my daily routine. Our life has come to a complete stand-still because of this infection. I only get 4-5 hrs a day on my leg before it starts killing me, I have a constant limp, it swells and the pain in my hip & leg is unlike anything I've ever had. My husband is my rock, he's very supportive, caring and attends every appt. I have with these Doctors, most of all, he's sooo frustrated, along with me! I'll keep you posted as the appt's materialize. Thank you so much for giving us a "outlet" to vent! It helps tremendously! Hugs to all- Peg- 1280
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