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HELP Long term mrsa effects???
Started by Kari
Posted: April 20, 2011 at 01:18
I had mrsa back in May of 2010. I was on lots of oral meds. Finally the
wound tested negative, however I still have pain in my leg from my hip
to my foot. I have been nerve doctor who said I had a bad nerve in my
leg and put me on more meds. I have told them they do not help sent me
to a pain dr to have a nerve block done this made the problem worse. Now
I have muscle aches and muscle spasm in my leg. What should I do now???
Never have had my blood work done to check any levels never seen an
infection doctor... any ideas?? I hope I’m not stuck with this pain I’m
only 28.... :(
18687
Re: HELP Long term mrsa effects???
Reply #1 by ladyk
Posted: April 20, 2011 at 15:39
Kari -

I believe you would do best to investigate your symptoms further. What was the nature of your MRSA infection… location? Was lesion cultured?

*You might consider seeing an orthopedist, neurologist concerning nerve problem, and I strongly believe anyone who contracts MRSA should have an adept Infectious Disease specialist on their team of physicians.

An adept ID specialist can serve as protector in cases where lets say an individual has leg lesion and ‘nerve doctor’ is inclined to invasively puncture skin barrier to block nerve… an ID specialist may advise as to the dangers of creating an open avenue during height of infection affording MRSA the ability to capitalize on and infect at a deeper level.

*Another thought is… some antibiotics carry serious complications. For example Cipro and Leviquin are known to cause tendon rupture in many who have taken such as antibiotic therapy attempting to control MRSA bacteria.

I believe you’ve answered your questions.
[“What should I do now??? Never have had my blood work done to check any levels never seen an infection doctor... any ideas?? ”] It is my opinion you should seek an Infectious Disease specialist in addition to other specialists mentioned above, have blood work to see if infection is present, rule out osteomyelitis... an infection of the bone or bone marrow, and investigate [“lots of oral meds”] you stated you’ve ingested in your post… for potential long term complications. I also believe you should have nare (nostril) culture to determine carrier status.

Here is a link which may be of interest to you concerning particular med complications.
http://www.mrsa-forum-usa.com/index.asp?forumID=13707&subject=Antibiotic-Cipro-/-Leviquin-Class-Action

As a side note: Some medical maladies we become afflicted with are not age or otherwise discriminatory… only requirement is - being a human host.

Hope this helps.

Best wishes,
ladyk

18688
Re: HELP Long term mrsa effects???
Reply #2 by ruth
Posted: April 20, 2011 at 18:13
Inosine helps restore nerve function and is found in Brewer's yeast

Acetyl-L-carnitine increases levels of nerve growth factor, an important healing
compound and it so helps maintain the myelin sheath around the nerves.

Pregnenolone is effective in relieving pain.

Vitamin A is good for neurodegeneration.

Methyl-B12 for peripheral neuropathies.

DHA in in oil is a preferred fatty acid for use in the formation of nerve cells,
promoting the natural electrical function of these important cells.

Vitamin E is easily taken up in nerve cell membranes where it acts as a potent
antioxidant to protect nerve cells.

B1 is required by nerve cells in order to function normally


18689
Re: HELP Long term mrsa effects???
Reply #3 by Kari
Posted: April 21, 2011 at 01:42
Ladyk
Thank you so much i called my dr today who is a neurologist and i go to
him the 28th i willbe asking him all kinds of questions once again. He
sent me to the cleveland clinic 2 weeks ago and they told me to have a
lumbar nerve block however im scared to have one bc i let them do one on
my leg and it made the pain 100% worse not better. The wound showed up
on my leg, i work in a nursing home and this is where i got it from. its
been 11 months and i feel i shouldn't have so much pain however maybe i
will??? And Ruth thank you too ill be asking about all these as well :)
18693
Re: HELP Long term mrsa effects???
Reply #4 by ladyk
Posted: April 21, 2011 at 17:48
ruth -

Are you personally taking all of these listed?

Caution should be expressed… when putting up lists of supplements, as some of us know the seriousness of complications one may experience due to side effects, interactions, etc. - which often elude the unsuspecting general public who are seeking quick fixes and do not take the time to exercise personal responsibility and research these, rather believing… it is written here - therefore it MUST be safe. This is far from the truth of the matter.

*PASS ~ALL~ MEDS AND SUPPLEMENTS BY PROFESSIONALS FOR OPINION BEFORE INGESTING!

ADDITIONALLY… RESEARCH ALL MEDS AND SUPPLEMENTAL CONSIDERATIONS YOURSELF AS THEY AFFECT YOU PARTICULARLY, KEEPING IN MIND CONTRAINDACATIONS CONCERNING POTENITAL SUPPLEMENTS ALONG WITH MEDS YOU INGEST ROUTINELY, AS WELL AS ANY INDIVIDUAL PRE-EXISTING HEALTH COMPROMISING FACTORS.

-

Researching your top 3 - proving caution point above.

INOSINE
Health Library
[Inosine is better known as a performance enhancer for athletes, although most of the available evidence suggests that it doesn't work for this purpose. Although no side effects have been reported with the use of inosine, long-term use should be avoided. *A very preliminary double-blind crossover study that enrolled 7 participants suggests that high doses of inosine (5,000 to 10,000 mg per day for 5 to 10 days) may increase the risk of uric acid–related problems, such as gout or kidney stones.]
http://healthlibrary.epnet.com/GetContent.aspx?token=e0498803-7f62-4563-8d47-5fe33da65dd4&chunkiid=21764

-

ACETYL - L - CARNITINE
WebMD
(particularly side effects and interactions)
[Under-active thyroid (hypothyroidism): There is some concern that acetyl-L-carnitine might interfere with thyroid hormone. Don’t use acetyl-L-carnitine if you have an under-active thyroid.

Seizures: An increase in the number or seriousness of seizures has been reported in people with a history of seizures who have used L-carnitine by mouth or by IV (intravenously). Since L-carnitine is related to acetyl-L-carnitine, there is a concern that this might also occur with acetyl-L-carnitine. If you have ever had a seizure, don’t take acetyl-L-carnitine.

Major Interaction
Acenocoumarol (Sintrom) interacts with ACETYL-L-CARNITINE
Acenocoumarol (Sintrom) is used to slow blood clotting. Acetyl-L-carnitine might increase the effectiveness of acenocoumarol (Sintrom). Increasing the effectiveness of acenocoumarol (Sintrom) might slow blood clotting too much. The dose of your acenocoumarol (Sintrom) might need to be changed.

Moderate Interaction
Warfarin (Coumadin) interacts with ACETYL-L-CARNITINE
Warfarin (Coumadin) is used to slow blood clotting. Acetyl-L-carnitine might increase the effects of warfarin (Coumadin) and increase the chances of bruising and bleeding. Be sure to have your blood checked regularly. The dose of your warfarin (Coumadin) might need to be changed.]

con't
18697
Re: HELP Long term mrsa effects???
Reply #5 by ladyk
Posted: April 21, 2011 at 17:51
http://www.webmd.com/vitamins-supplements/ingredientmono-834-ACETYL-L-CARNITINE.aspx?activeIngredientId=834&activeIngredientName=ACETYL-L-CARNITINE

-

PREGNENOLONE
EHowhealth
Side Effects of Pregnenolone
[Pregnenolone is a natural hormone people can buy as an over-the-counter dietary supplement. Doctors theorize it may cause side effects associated with other hormones, especially at high doses, because the body uses pregnenolone to make estrogen, progesterone and testosterone.

Possible pregnenolone side effects include acne, anxiety, headaches, insomnia, irritability, menstrual changes and facial hair growth.

Pregnenolone use has been linked to heart palpitations and irregular heart rhythms.

Scalp hair loss is also possible if someone uses pregnenolone for long time frames, because it is eventually converted into testosterone and progesterone.

*Because pregnenolone may increase estrogen or testosterone levels, men with prostate cancer or at risk of prostate cancer, and women with breast or ovarian cancer, should not take pregnenolone except under a doctor's supervision.

Theoretically, pregnenolone use could cause seizures in people with epilepsy or who are taking anti-seizure medications, because of its action on certain brain neurotransmitters.]
http://www.ehow.com/facts_5231521_side-effects-pregnenolone.html

-

MED TV
Pregnenolone Side Effects (be sure to read ‘Pregnenolone Supplement Information’ links)
[*Pregnenolone is a hormone that is used by the body to make all other steroid hormones in the body, including (but not limited to) progesterone, cortisol, aldosterone, testosterone, and estrogen. The body makes it using cholesterol. In addition to its use as a precursor for steroid hormones, pregnenolone can block the effects of GABA (gamma-aminobutyric acid), a brain chemical that can slow down or stop certain nerve signals in the brain.
Pregnenolone is a hormone that the body uses to make many other hormones. Theoretically, pregnenolone could stimulate some cancers (especially hormone-sensitive cancers), endometriosis, or uterine fibroids.
Pregnenolone may increase the risk of seizures. This may be especially important for people with a seizure disorder (or a history of having seizures). If you have ever had a seizure, check with your healthcare provider before taking pregnenolone.]
http://menopause.emedtv.com/pregnenolone/pregnenolone-side-effects.html

-

Some very good advice:

Just like ANY medication or supplement, they can cause side effects. People often assume that natural products are free of side effects, especially dangerous ones. However, this is simply not the case. It should be assumed that any supplement potent enough for medicinal use is capable of causing side effects!

ladyk

Attempting to preserve everyone’s safety if remotely possible. MRSA is quite enough to deal with on its own face, without dealing with added complications from the infinite amount of potential ‘cures’.

18698
Re: HELP Long term mrsa effects???
Reply #6 by ladyk
Posted: April 21, 2011 at 18:30
Kari -

You’re welcome.

I’m glad you are taking a proactive stance in seeking neuro consultation. An investigative diagnostic tool you might consider passing by neurologist for opinion is a CT scan/good for detecting bone anomalies - where as MRI/good for detecting soft tissue anomalies, although less efficient than CT scan when it comes to bone… which may reveal clue as to what is going on internally without invasively breaking the surface barrier.

Has leg lesion healed without further outbreaks beyond initial MRSA infection?

ladyk

18699
Re: HELP Long term mrsa effects???
Reply #7 by Bob Anderson
Posted: April 22, 2011 at 15:34
Kari -

I suggest you read as many of the garlic posts in this forum as possible as I believe you can get a great deal of help by learning how to identify good garlic and how to use it to kill MRSA. It really works if you get natural (non-irradiated) garlic and use it in garlic water.

If my previous experience with a health care facility was as negative as yours was, I'm not sure I would go back for the same kind of treatment again.

Good luck to you.


18703
Re: HELP Long term mrsa effects???
Reply #8 by Kari
Posted: April 23, 2011 at 02:29
I am taking neurontin 600 mg 4 times a day Cymbalta 30 mg 2 times day
calcium, iron and a flector patch for pain 1 every 12 hours. Then
because I cannot sleep at night due to increased pain at night they put
me on nortiptyline hcl 25 mg. I still work in healthcare so my nose I
guess will always test positive I was told. For the pain they want to
implant an nerve blocker in my back. I do not feel like that is the best
option due to they say i am high risk of getting the mrsa back with any
surgery! The wound has healed i have a huge scar on my leg :(
18707
Re: HELP Long term mrsa effects???
Reply #9 by ladyk
Posted: April 23, 2011 at 17:51
Kari -

How long have you been on current med list above? Are all physicians caring for you aware of your current meds?


In my opinion there is a twofold problem concerning decolonization of MRSA positive nare (nostril) carriers.

First and foremost we are dealing with a ‘multi-drug resistant’ bacteria which is an evolving pathogenic contagion when speaking of MRSA. Resistance to our limited arsenal of conventional drugs is an ever increasing concern as studies reflect. ALSO, alternative treatment effectiveness is often limited due to bacterial strain, degree/location of infection, and immune system health of individual! This is why some individuals experience good results, and others do not. Pushing alternative treatments that do not assist particular individuals is risky business where loss of valuable time taken for self treatment may prove fatal to some. If one has contracted a serious pathogen like MRSA they should always seek a physician who specializes in infectious diseases - of which MRSA is. An ‘adept’ Infectious Disease specialist may very well be the one who saves the life of one seriously infected. The blending of medicine… both conventional and alternative methods of care should both be researched, and consultations with team of caregivers concerning all options and opinions is the best safety measure we can take in attempt to limit complications.

1.) If one decolonizes nares… on a routine basis studies reveal they risk Bactroban/Mupirocin (antibiotic ointment used to decolonize nares) resistance, rendering treatment useless. Also, since MRSA is so prevalent one may decolonize only to go out into public arena and pick up bacteria directly, becoming colonized again.

2.) If one does not decolonize nares… they possess a transferable reservoir of this pathogenic contagion. For the sake of conversation lets say one is healthy with an optimal functioning immune system - such individuals may remain asymptomatic MRSA positive carriers demonstrating no signs of infection, BUT are capable of cross contaminating the bacteria to other sites about their body and others. A step further… lets say said individual has open wound on finger and cross contaminates bacteria from nares to open wound ~ wa la perfect setting for MRSA to capitalize on open wound and infect.

Another factor concerning asymptomatic vs. symptomatic carriers is one’s immune system health. One can carrier MRSA at nare site without signs of infection until their immune system is compromised, at which time MRSA can/does capitalize on system weakness.

con't
18710
Re: HELP Long term mrsa effects???
Reply #10 by ladyk
Posted: April 23, 2011 at 17:55

Since you work in high contraction risk environment I believe it would be in your best interest to wear gloves, use hand sanitizer frequently when you can not wash (be aware our hands give bacteria the legs they need to cross contaminate), and decolonize skin routinely with Hibiclens antimicrobial wash 3x weekly - pass this by your ID specialist. Take note: Hibiclens carries warning - DO NOT GET INTO EYES & EARS. Shed your shoes, pens, etc. and uniform at door - wear once - then wash with bleach if possible - dry in dryer. Same with towels - one use. Routinely clear home environment using bleach where appropriate and Lysol spray all touch sites (light switches, door knobs, tv remote controls, etc.) as attempt to reduce bacteria volume in your environment.

You can read more information on forum’s associated website MRSA AMERICA & Beyond (drop down menu Carrier - Colonized etc.) http://webpages.charter.net/mrsa.america_beyond/index.html

It is AS important to build a better body/support optimal immune system function by supplementing that which you lack from your diet.

Knowledge is power. Learn all you can concerning affliction you are up against, and how best to stay as safe as humanly possible in our hostile environment on planet earth where we are bombarded daily with many pathogens struggling and adapting (mutating) for their survival as well.

Hope this helps you.

ladyk

18711
Re: HELP Long term mrsa effects???
Reply #11 by Kari
Posted: April 24, 2011 at 04:39
ladyk
I have been doing all of that.. and yes all the doctors know about the
list of meds im on.i have been on some of them since may 2009 I used
hibiclens when i first had mrsa. i will be doing some more research on
this all before i go to the dr the 28th thank you for everything :)
18712
Re: HELP Long term mrsa effects???
Reply #12 by Sandi
Posted: April 25, 2011 at 18:14
Be sure to ask for a sed rate when you have blood work. with out a wound to culture, that is the only way you can tell if your MRSA is under control.
18714
Re: HELP Long term mrsa effects???
Reply #13 by kari
Posted: April 25, 2011 at 21:33
Sandi
Thanks i will be sure to ask on thurs... ill let ya all know what my
next step is. They are taking surgery to put in a nerve blocker not so
sure im ready to go for that,
18715
Re: HELP Long term mrsa effects???
Reply #14 by Kari
Posted: April 27, 2011 at 01:41
would the mrsa cause the muscle and joints to hurt all over? or just in
the spot the mrsa was at??
18729
Re: HELP Long term mrsa effects???
Reply #15 by ruth
Posted: April 27, 2011 at 18:00
MRSA can cause the joints to hurt all over. SAMe and vitamin D relived my pain in a few
days.
18732
Re: HELP Long term mrsa effects???
Reply #16 by kari
Posted: April 28, 2011 at 02:24
What is SAMe??? maybe i need to pick up some Vitamin D i will make sure
all this is in the lab to make sure im not too low... :)
18734
Re: HELP Long term mrsa effects???
Reply #17 by ruth
Posted: April 28, 2011 at 05:24
SAMe works well in countering the fatigue, inflammation and pain of osteoarthritis
(staph infection in joints). SAMe as effective as pharmaceutical treatments for pain and
inflammation. But unlike the NSAIDs, SAMe shows no sign of damaging the digestive
tract.

Intracellular bacteria and viruses are suppressed by methylation and this is done with
a selenium compound called S-Adenosylmethionine or SAMe. The supplement SAMe is
a synthetic form of a compound formed naturally in the body from the essential amino
acid methionine and adenosine triphosphate (ATP).


18735
Re: HELP Long term mrsa effects???
Reply #18 by Kari
Posted: April 30, 2011 at 02:24
I am getting a tens unit on tues. Hope this helps any advice??
18746
Re: HELP Long term mrsa effects???
Reply #19 by tommy_riley
Posted: May 10, 2011
I finally ordered some SAMe myself - should be here by May 11th or 12th. Will report back and let folks know if it has helped with my fatigue/energy levels or not.
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