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so many questions and so few answers
Started by lorianne |
Posted: October 10, 2009 at 02:50 | |
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I am a 32 year old who has been plagued by frequent mrsa infections for the last 2 solid years come November 1st. It all began with an ingrown hair on my knee the morning of october 30th 2007 (which was the day after an emergency room visit) and by the afternoon on November 1st it was a deep MRSA infecton the diameter of a softball. I knew what it was because my mother had one on her calf 6 months earlier, but in her case she never had anohter. Unfortunately in my case i have since continued to get a new infetion every month or so after treatment and decontamination like clock work. I wonder if there is a cycle in the infectiousness or something... just hangs out in my nose till it's more infectious or my immune cycle is at a low point... maybe it's my chemistry? i'm grasping at straws trying to find the answer to reinfection. I currently am seeing my regular clinic doctor, an infetious disease specialist, and now a dermatologist to whom I was refered by the specialist.... no solid answers to my reinfection yet. Because i go above and beyond any of the precations one could take in all areas of decontamination and personal hygiene in my daily life even when i do not have an active infection and i have always had skin problems my doctors agree that the cause must be the condition of my skin making it very susceptable to infections and MRSA in particular. My skin is oily and porous and i have some mild mild times of exema and have had acne since 11.. my skin is fair and soft... still no conclusive answers to any of it because the infections continue and over time, wjth each infetion it becomes more and more resistant to more and more antibiotics. I'm on the weird expensive stuff now. maybe would it be better to treat it fast and hard as in higer doeses of antibiotics during a corse of treatment to not allow resistance in the first place? I feel like I live in a bubble. My personal heygiene routine is precise and time consuming, altough i still get frequent mrsa infections while following it and have noticed that if i slack on it even just the smallest bit the frequency increases as does the amount of infection sites. For a long time my doctors didn't take me seriously i supose because i'd hear the usual "wash with this like this for this long, and take this exactly like this, and wash your clothes, and change your bedding, and all the usual methods of decontamination" repeated to me each visit. I am one to catch my infections at the first and smallest sign and make an emergency appointment because i know what will happen if i don't; It will get worse and bad very quickly. Untill very recently i had been considering letting an infection get serious and life threatening just so i would be taken seriously and get help. luckily it didn't have to go this far and in august they began to believe me when i told them that i do everything i i say i do...which is everything anyone could do... my laundy list and my routine. i just want a normal life again 15270
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Re: so many questions and so few answers
Reply #1 by emily |
Posted: December 10, 2009 at 21:01 | |
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Hi Lorianne, I've really got nothing new to say, but I just really identified with your post. I found this forum today while looking for information about MRSA in the lungs, which I'm afriad my infection might have progressed to. I'm around your age (33) and I teach elementary school art (550 students of a very low socio-economic status- i.e. most are not the most hygenic). My first MRSA infection was last year and it effected areas of my skin. Last month I had horrible pain in my nose that spread to my sinus area- had it cultured and they found MRSA. This scared me beyond words- being an asthmatic and having this infection so close to the enterence ways to my lungs, brain, etc. None of the medical professionals in my small town that I went seemed to think this was a big deal. I wanted to see someone asap after they found the MRSA, but was put off for a few days. The whole point of catching it quickly was just disregarded! I was eventually treated with an antibotic cocktail. I ended my round of pills about 2 weeks ago and starting last night, I have begun to have increasing pain in my right lung when I cough, clear my throat or breath deeply. I wish now that I would have found a good ID doc to try and get control of this. I try to be hyper vigilant about disinfecting, etc. but I find this whole thing so overwhelming, which pushes me to eat emotionally foods that are probably the opposite of what I should be eating. And I feel like my work place is most likely where I was exposed to this thing...I see every kid in the school. I used to get 100 hugs a day, and now I freak out inside everytime a kid gets near me. I'm seriously considering completely changing my career, it's just too anxiety provoking to work in a school where I'm overly suseptible to every strain of whatever's out there. I'm wishing for a normal life already and I don't think I've had near the consistancy of infection that you have had. I know that stress impairs the immune system and going through all this MRSA stuff is definitely stressful! I hope things are going better for you. Definitely repost with your progress & experiences. It helped me to hear your story- helps to hear something you can related to. Love & healing to you! emily :) 15770
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Re: so many questions and so few answers
Reply #2 by ladyk |
Posted: December 13, 2009 at 16:58 | |
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lorianne - It sounds like you have a good understanding of topical care... but what are you doing to support your immune system so that it can fight system invaders as it is biologically preprogrammed to do? MRSA care is twofold - topical and internal. There are volumes of information on immune support on this forum, if you would like further information let us know. *It is possible to interrupt cycling which many of us who are MRSA positive have experienced. Please provide as much information as possible concerning your case... topical care regimen, meds you take routinely, pre-existing immune compromising maladies (diabetes,etc.) and we will try to help you all we can. ladyk 15780
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