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Sore lymph nodes after MRSA/Mono
Started by Sick of MRSA
Posted: September 28, 2008 at 09:10
In November of 2007, I was diagnosed with a MRSA staph infection on my face. I was put on five oral antibiotics. Two days later it had spread and was moving up towards my brain and eyes. My doctor opened it, drained and cultured it, and confirmed it was MRSA. He then put me on six different oral antibiotics and it improved, but it had gone systemic and went through my blood and lymph system and ultimately shut down my immune system. I developed six very painful nodules in my groin area underneath the skin. My doc said they were a part of the MRSA infection. After two weeks I returned to work-I'm a teacher, which is how I got MRSA to begin with (a student had MRSA two weeks before I did).

Within a short time I also developed mono and was horribly sick again. My doctor made me take two months off work and stay in bed saying that my immune system could not be exposed to anything else from my students. During that time I had another MRSA staph infection and was put on antibiotics again. In January I got my third MRSA infection and it took two months to completely heal. I have had two more MRSA infections since then.

Almost on a weekly basis I get too worn down even though I now have a job in an office where I sit most of the day. I am so fatigued at times I cannot get out of bed. My lymph nodes in my neck, armpits, and groin hurt almost all the time and then some days it is such a deep, intense, throbbing pain in those areas that I can't sleep or get comfortable. When I get that incredible pain, I stay in bed.

Some days I'll have a fever of about 100-101. I sweat and it irritates my skin which is still sore from these infections and the toxic medications, and then I get a whole new infection. I keep getting really sore areas in my mouth although I can't see anything. The tissue is sore underneath up high near my sinuses, not at the gum line.

When is this going to end? It has been ten months of dealing with these aching lymph nodes. I guess I can handle the boils and eveyrthing, but the sore lymph nodes wear me out. My doctor doesn't know what else to do.

Do my lymph nodes hurt because of the mono or because of MRSA or both? How long should I expect this to continue? I HATE being sick!!! I missed more work last year in two months than I have in my entire adult career.
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Re: Sore lymph nodes after MRSA/Mono
Reply #1 by Joe
Posted: September 28, 2008 at 15:53
Sorry to hear your story I know how you feel because I had to deal with many painful infections myself. But do not despair because although there is no known cure out there but with proper education and prevention you can have it under control.I suggest that you read the replies under topic Son with Presistent MRSA by Lori.T you will find a lot of information that will help you dealing with the infection. You said that you was put on five different antibiotics but how can you doctor know wich one the bacteria is sensitive to and to wich one is resistent to without the culture test done by the lab ?You have to have the culture test done to find out to wich antibiotics Mrsa sensitive to because only those antibiotics that the bacteria show sensitivity will fight it effectively . If your doctor gave you antibiotics that the bacteria show resistence that means that over time it will become stornger and much more difficult to kill, just think about it do you want to take a chance with a strong bacteria like MRSA ? The reason why is called the superbug because over time it developed a strong resistence to most of the antibiotics that are available today and that is why so difficult to treat . So you must talk to your doctor about the culture test and make sure that any antibiotics you take is sensitive to Mrsa and not resistent and without the culture there is no sure way for any doctor to know that. When I contacted this infection the first time I did not know what was happening to me and I never heard of Mrsa before and was desperate to do anything to stop it. For five month the doctor and a surgeon treated me with the wrong antibiotics that the bacteria showed resistance to no wander it kept coming back. I want to spread the information that I learned about MRSA to anybody out there so they can be better prepared that I was fighting the superbug and by being better prepared and more informed they can go through less pain and frustrateion than I did. Also it is important to understand and a lot of people out ther do not understand is that the antibiotics given to you by the doctor is to stop the bacteria caused wound and infection from spreadin and causin more serious damage and it will not stop the bacteria from coming back. In order to stop Mrsa from coming back you have to break it's mutating cycle and for that you have to use Hibiclens. Hibiclens is an antibacterial antivirial liquid soap available at any pharmacy without prescription and it is proven to kill MRSA. It can be used on any kind of skin infections, boils ,it is so effective I heve never seen anything like that before. But it will take time to break the cycle it will not happen overnight so you have to be patient. Hibiclens was given to me by the infectious disease specialists hwo treated me and since I am useing it I am doing good. Also you have to see an infectious disease specialist because they are the one hwo best prepared to treat MRSA.
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Re: Sore lymph nodes after MRSA/Mono
Reply #2 by Sick of MRSA
Posted: September 28, 2008 at 16:11
Thank you both for your responses.

I thought my earlier message was too long so I tried to cut it down.

My doctor did culture it on the third day and he did tell me what it was resistent to and then he changed the medications based on the culture.

This is what I took and continue to take:
11/7/07
1. Mupirocin gel
2. Sulfamethoxazole/Trimethoprim
3. Zyvox
4. Doxycycline Hyclate
5. Metrogel


1/23/08
1. Metrogel
2. Altabax ointment
3. Zyvox
4. Hibiclens (use once weekly when not infected, every day when infected)
5. benzaclinz


3/3108
1. Valtrex for cold sores (Use immediately to prevent cold sores becoming infected with MRSA--I never had cold sores before MRSA)
2. Altabax ointment (antibiotic cream for MRSA infections)
3.Tri-Luma Cream (to repair skin/bleach scars)
4. Hibiclens (use once weekly when not infected, every day when infected)
5. benzaclinz (prevent acne)
6. Retin-A (to repair skin/reduce inflammation and reduce scars)

I will continue to be patient. I have no other choice, right? :)
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Re: Sore lymph nodes after MRSA/Mono
Reply #3 by Cathy
Posted: September 28, 2008 at 20:03
My daughter had MRSA about six months ago. When we used the Altabax it got worse. We looked it up on Altabax website and it says right on there that it is not for MRSA!! Be careful! We used a product that worked wonders. Please contact me for the information as we are not supossed to put it on this forum page.
cathyconner333@hotmail.com
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Re: Sore lymph nodes after MRSA/Mono
Reply #4 by Sick of MRSA
Posted: September 28, 2008 at 21:22
Thank you Ladyk and Cathy for the great information.

I'll be honest and say that MRSA has kicked my butt and I'm not sure how to bounce back. I was forced to stop teaching because my immune system couldn't handle it and I loved teaching. I wash my hands constantly, which I did anyway. The doctor said I am not supposed to touch my skin while at work. I don't work or leave the house if I have an infection that is uncovered. I use hand sanitizer all the time and don't touch people anymore. I am single and live alone, but I clean everything with bleach everytime I wipe it down. I have stopped dating because it is just easier to not have to worry about infecting someone. One man said it was just too risky to be around me.

When I first became infected, I was teaching at a college in addition to my regular job. They closed both classrooms and disinfected everything, and they continued to do that weekly after I returned. I don't have the energy to teach any longer. I am still at the school but not teaching.

I have had infections on my face, my stomach, the hairline, and down the shin of my left leg. This weekend I am fighting a massive infection in my armpit that seems to be deep in the lymph nodes. I can feel at least two lymph nodes that are hard, large (you can see them enlarged) and sore as hell to touch.

The last two infections I had I did not take oral antibiotics because they are so toxic and the doctor said he can't keep giving them to me. When I first notice a boil, I use hot compresses to open it up and use the topical medications I have, including hibiclens. I clean it twice a day to draw out the infection and keep it covered the rest of the time. With this new infection I cannot get it to open up. I will see the doc Tuesday.

I've asked and tried to research probiotic or other methods to improve my immune system. I'm tired. I'm tired of thinking about this and talking about it.

I beat cancer when I was 25 and I was very proactive in taking control of that. My immune system has always been weak since I had cancer. I am 45 and too tired now. I saw three doctors and they all said that I will continue to do this until my immune system improves, but they didn't tell me how to do that. I have not seen an infectious disease specialist and I know I should.

This was the first summer I did not work. I spent time every day working on my diet, vitamins and working out. I lost ten pounds and started gaining back some muscle. But then I started getting infections in my hairline from sweating and the battle in my lymph nodes started all over again. I didn't have the energy to push through it so I stopped working out.

I go to work, and make it through the day and then come home and go to bed. I sleep all weekend. I realize this is no way to live but I am so tired.
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Re: Sore lymph nodes after MRSA/Mono
Reply #5 by Joseph
Posted: September 28, 2008 at 21:50
At first you did not mention that culture was taken and due to the sensitivity test the doctor changed your medication so you are on the right track. By the way you said that you taking Sulfamethoxazole/Trimethoprim . This is the antibiotics that I took the last time because Mrsa showed sensitivity to it and I noticed that after taking this antibiotics my wound healed faster and without less pain than before so it looks like that it was the right medication to take. That is why it is so important for anybody with recurring MRSA to know to wich antibiotics the bacteria is sensitive to because it will speed up the healing process . I wish I knew this at the biginning of the first outbreak I am sure would not have taken seven month to bring it under control. So after taking the antibiotics keep using Hibiclens because only Hibiclens will be able to break the bacteria's mutating cycle. I can not say it enough how good I found Hibiclens worked for me I mean that this stuff is not just for MRSA it works on any kind of infection associated with the skin.The other day I had a cut on my finger so I applyed Hibiclens to the cut for two days and the third day the cut is healed completely. If you notice any kind of infection is about to develope on the skin including MRSA just rub it on the affected area and do not wash it off do that twice a day I am sure it will stop it to develope it into serious problem . So in my opinion the right kind of antibiotics and Hibiclens showing a good defense against this so called superbug. I also agree with Ladyk that your immun system plays a very important role in fighting any kind of bacteria or invading agents so keeping it strong and build it up is important. One way you can do that if you start to take Probiotics after finishing your antibiotics. Probiotics available in any vitamin store or drug store and they replace the good bacteria that the antibiotics also killed. The problem with antibiotics are that they do not know wich bacteria is good and wich bacteria are bad once you taking them they will kill both. And the good bacterias are playing a major role in keepeng the immune system and the digestive system healty.
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Re: Sore lymph nodes after MRSA/Mono
Reply #6 by sick of mrsa
Posted: September 28, 2008 at 23:19
LadyK-

This website you gave me is incredible! I have been researching MRSA for close to a year now and have never found this type of information. THANK YOU!
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Re: Sore lymph nodes after MRSA/Mono
Reply #7 by Nancy R
Posted: September 29, 2008 at 05:37
I feel your pain. However, you have been under the care of the wrong doctor. You DO need to see and ID and do it now. It is there job to be state of the art and because they see more patients, they get a feel for what works and what doesn't.

I agree that you must strengthen you immune system. Ultimately, THAT'S what keep recurrence at bay.

I had HA MRSA, so I didn't ever have to deal with topical meds at all. However, Zyvox was one that I had, to separate times, administered via PICC line. It worked until I stopped taking it and then within a few weeks, the MRSA was back with a vengence.

What ultimately did work for me was being on a course of Daptomycin (Cubicin) via PICC and Bactrin (orally). I have been MRSA free for 13 months now.
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Re: Sore lymph nodes after MRSA/Mono
Reply #8 by ladyk
Posted: September 29, 2008 at 18:58
Sick of MRSA -

To be sure… your not alone - MRSA has kicked many of our butts. But I wanted to write to you concerning something you wrote:

[ I was forced to stop teaching because my immune system couldn't handle it and I loved teaching. I wash my hands constantly, which I did anyway. The doctor said I am not supposed to touch my skin while at work. I don't work or leave the house if I have an infection that is uncovered. I use hand sanitizer all the time and don't touch people anymore. I am single and live alone, but I clean everything with bleach everytime I wipe it down. I have stopped dating because it is just easier to not have to worry about infecting someone. One man said it was just too risky to be around me. ]

MRSA can most certainly bring us to our knees. But knowledge is power! We are links in the chain of empowerment through awareness of the super bacteria MRSA which challenges science and medicine across the globe. Your being 45 and a teacher, you are far from done the job you love. You may have to address changes in your life since being MRSA positive, you may be able to work from home during outbreaks… but outbreaks are controllable to a degree. In fact, as a teacher you have a platform that has the potential for raising MRSA risk awareness, in order to protect (as much as humanly possible) many who are still unaware of the many super bugs plaguing us as human host. So while your in weakened immune system state it is not difficult to think in the negative, as you feel your physical slip. I took it finally as “yep… time to take care of me” and it is, unless you wish to slip to a physical state where others make decisions for you. So cry a little, storm around a little, but pick yourself up by the boot straps and learn all about your affliction and how to control it, and when you start to feel better… give a bit back in whatever way your able to spread awareness - not the bacteria ~

You will find we can control it.

I’m here to bring you hope. It’s all about committed intervention. We live in a world of constant invaders, viruses, bacteria, etc. The one man who said he didn’t want to risk being around you made a decision that was right from him, but he could very well pick up this bacteria by touching a table, a door, a glass, silverware, a restroom faucet, etc. Bacteria such as MRSA can be contracted in a multitude of public arena locations. But… if you know how to control bacterial overload, you will gain back a bit of normalcy in your life. For example: my husband continues to remain negative. I contracted MRSA in May 06. Just as other communicable diseases impact relationships, so is true of being MRSA positive… where up front, factual, honesty serves as a measure of commitment we seek at the end of the day.

Take it easy on yourself

ladyk
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Re: Sore lymph nodes after MRSA/Mono
Reply #9 by sick of mrsa
Posted: September 30, 2008 at 02:52
I didn't mean to sound negative. This was a rough weekend.

I know you're right. The guy who said that didn't upset me. It was just something he said. But dating is hard enough for me at my age. haha I'll be fine.

Thank you.
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Re: Sore lymph nodes after MRSA/Mono
Reply #10 by janice
Posted: October 30, 2012 at 23:46
I have had mrsa and the side of my breast is sore and down the side of my body under my arm on my right side. Is this a side effect of mrsa?
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Re: Sore lymph nodes after MRSA/Mono
Reply #11 by ladyk
Posted: November 1, 2012 at 16:07
janice -

A couple quick questions...

When you say you've had MRSA, where exactly?

Are you under the care of an Infectious Disease specialist?
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