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MRSA in the Brain
Started by Gina
Posted: September 10, 2008 at 18:18
My son contracted MRSA in his brain following surgery to replace his left bone flap. It took 2 months and 3 doctors before he was hospitalized and diagnosed. I was very concerned when part of his incision wouldn't heal and kept oozing yet was repeatedly told not to worry it's probably just a deep stitch that abscessed and it'll go away on it's own. When he had his follow up appt with his neurosurgeon it took 2 seconds for him to see something was wrong and the next morning he was in surgery. Well thanks to incompetence my son had to have the left hemisphere of his brain removed, the bone totally crumpled while being removed so now he needs a titanium plate to replace it. We've been fortunate in the respect that he's been infection free for 5 months. But from everything I've read that could change at anytime. What I'm wondering is, has anyone else had MRSA in their brain and if so how are doing?
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Re: MRSA in the Brain
Reply #1 by ed
Posted: September 17, 2008 at 21:29
i am colonized with mrsa in my sinuses and i guess it might be also in my brain but since it does not make me sick or progress into an infection, then i will probably be ok.
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Re: MRSA in the Brain
Reply #2 by Larry
Posted: January 19, 2010 at 02:58
Yes I have had MRSA on my brain. I got it in March 2008, since then I have had 1 surgery because of reinfections and 2 surgeries to replace the skull flap and it has been a long process but today 1/2010 (just having my last surgery in Dec 2009) I am doing well. My life is not normal by any means but I am better than I was over a year ago. No MRSA is in my system and my Drs are very hopeful that this is the end of this MRSA issue with me.
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Re: MRSA in the Brain
Reply #3 by nicole
Posted: October 5, 2010 at 05:52
My mother went for a surgery a year ago in sept..She had a braintumor..After surgery 3 days she was in a regular room not the icu..she started leaking spinal fluid out of the back of her head. long story short she ended up having mrsa in her brain..she had numerous procedures done..ventrics shunt etc..she was not expected to survive.she was in nsicu for 3 and a half months.My mom now needs 24hr care..i avd to quit my job to take care of her..she has double vision and her gait is off and needs assistance when walking. hospital believes the mesh had the mrsa on it..they eventually took it out after she became a little stronger..thats when they put in the shunt..very sad situation..but i am lucky to have her.
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Re: MRSA in the Brain
Reply #4 by ladyk
Posted: October 5, 2010 at 21:50
nicole -

Iím very sorry to learn of your motherís suffering. Yes you are lucky to have her, and sheís lucky to have you!

If I can help, let me know.

Best wishes,
ladyk

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Re: MRSA in the Brain
Reply #5 by MY STORY IN SINUS EARS BRAIN
Posted: November 19, 2010 at 17:54
I have been dealing with it full blown for a year now. Initially my neck from my adams apple to my spine and from my ear/check bone to my collar bone was black and swollen to the point that my neck and check had NO definition and I could not turn my neck at all. I thought i was dying. I knew what it was and in my opinion knowing what i know now, I had it dormat in my body for almost 10 years until it got to this point. In college I lived in a $hit hole frat house that was disgusting and I developed a stuffed up nose and sinisus that NEVER unstuffed for ten years. I also at this time started getting really bad boils in my beard that I dismissed as ingrown hairs since i have a thick beard. So ten years later with my neck swollen, I went to my Dr who took one look at me and said it was MRSA that was septic and in my blood and maybe even in my bones. However, I told her that I was already prequilified for insurance policy that would kick in, in a week so I really just wanted an oral antibiotic and no culture so that once covered by insurance it would not be considered preexisting condition. THis helped with coverage later but ultimitly hurt my overall recovery. I was placed on double dose bactrim for 28 days and then 10 day s of doxycycline followed by 6 months of clyndimycillin and then another 3 months of bactrim again. It truns out that since my original dr didn't culture it or really make huge notes in my chart (at my request since she really helped me out by nopt making it documented as preesxisting conddition) subsiquent drs thought I was lying and exagerating the severity of my infection. I had it in every one of my spine bones, shoulders, back, neck, arms, legs, face, nose, ears(YEAH ACTUAL LOBES) head forhead, neck, and especially behind my ears and jaw bones. Ten months later, and still using hibiclens daily, it is just now begining to lesson the amount of puss draining from my ears, back, head, and lungs (sinus) however I still have them and they still drain hard dry black, green, and even sometimes blueish puss. I found that above all else, what has helped is an ointment called mucripurin and high daily doses of over the counter vitimens such as vitiamen C and NAC (n acyl cestine) the NAC is used in Europe along with antibiotics to get puss and fluid out of your body for bronchitis and normal colds etc. ALso today at least I can breath and my sinusu cleared after ten years of trying every allergy remedy and nasal spray ever made. WOw it felt nice to get this off my chest as my wife thinks I am making this all up and just self mutilating myself by constant picking.
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Re: MRSA in the Brain
Reply #6 by Amy
Posted: February 7, 2012 at 16:57
Wow,my mom had a brain tumor removed in 2009,it would not heal,Dr.brushed it off 4 almost 2 yrs,well a different Dr.did a another surgery the 26th if January 2012,removed the plate w/another 1 & did cultures & now she has MRSA in the bone,she has only been taking her infusion antibiotics 4 a week & doing pretty good w/it,but listening 2 stories just scares me of the future w/this,has anyone of filed any lawsuites,I told my mom 2 talk 2 a lawyer b4 she had this last surgery,I am just furiated about a Dr.going 4 almost 2 yrs b4 doing another surgery that just shows me there was no concern 4 his patient @ all,if any of U could tell me more,I would appreciate it 4 knowledge is power.Thanks.
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Re: MRSA in the Brain
Reply #7 by Rebecca in Palm Springs,CA
Posted: February 26, 2012 at 04:26
I got the MRSA infection in my skull, while in the Hospital
recoverying from head surgery to release pressure from a blood clot
that burst and caused a Subdural Hemotoma. The infection attacked my
skull and had to be removed. So I wore a helmet for 6 months while
they made sure the MRSA was gone and made the Titanium plate to
replace missing skull. After metal plate was put in I don't need
helmet. Only residual problem is occasional Grand Mal Seizure. But
anti-seizure Medication (Keppra) is eliminating seizures. So
hopefully DMV will give me my license back.
I'm tired of riding a bike everywhere at age 45. Be carefull while in
hospitals...they're not clean places and MRSA is lurking everywhere to
get into open wounds. If You itch your stitches in skull wear gloves!
MRSA is deadly and very few antibiotics can work and are extremely
expensive!
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Re: MRSA in the Brain
Reply #8 by Ray Pippin
Posted: September 18, 2012 at 21:39
I was infected with MRSA on the job in Oct 2007 on my stomach, I had infections since then off an on for 5.5 yrs now. I have my nasal swabbed every three months an it is mostly always positive with MRSA an my stomach drains alot and gets worse at times, I am wondering if maybe the MRSA is in my brain cells now? I am dizzy alot and unstable on my feet alot of times for past 4 months, The MRSA has changed my Diabetes for the worse and my lungs have been affected as well with the pneumonia i had twice since 2007. So i just wanna know if anyone else has these issues like i have????? I am 46
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Re: MRSA in the Brain
Reply #9 by ladyk
Posted: September 22, 2012 at 15:49
Ray -

I'm sorry to see you're struggling with MRSA infections. I have a few questions if you don't mind. Have you attempted to decolonize your nares (nostrils), and your skin? Is your diabetes under control at this time? What are you doing to support your immune system?

Hope to help.
ladyk

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Re: MRSA in the Brain
Reply #10 by jackie
Posted: November 12, 2012 at 15:49
I too have contracted MERSA during brain surgery in May of 2011. The Dr's thought it was just on the surface of the the incision. I got large knots on my scalp. The neurogist didn't seem consern. then in Feb.of 2012 one started to ooze. The surgeon had me come in & did a MRI & CAT scan & found out the MERSA was under my skull. Emergency surgery was done & the left side of my skull was eaten away by the MERSA. That part of my skull was removed & I have been treated the first 5 months with antibiotics. The MERSA has been dormit for the last 4 months & tomorrow I go in for replacement surgery. They decided titatium is the best material to use. What I want to know is how will anyone know if it attaches it self to the plate? With metal in me I dont think they can do a MRI. If anyone else has been through this & can answer my question. Im really really scared.
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Re: MRSA in the Brain
Reply #11 by Jayme
Posted: November 15, 2012 at 02:49
my father has had a brain tumor they tried to remove it. They did many operations an he was not healing and his head is leaking fluid. The doctors now say he has MRSA in his brain. He is not responding to antibiotics or any other treatment they have gave him. i would just like to know what is his chances of making it out of the operation??? He has had 2 brain operations prior to this one the brain tumor he had is called acoustic neuroma.. He is currently in prison an they have done nothing for him since day one. Please if anyone can help with any information it would be helpful
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Re: MRSA in the Brain
Reply #12 by Sandy
Posted: February 6, 2013
what happens when people get MRSA in the brain?
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Re: MRSA in the Brain
Reply #13 by Nelson
Posted: February 6, 2013 at 15:08
My son is in the hospital as of now fighting the mrsa in his brain. He
is paralized on on his right side I just pray he will recover from this
mrsa infection.N

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Re: MRSA in the Brain
Reply #14 by Melissa
Posted: June 26, 2013 at 20:40
My son had MSSA in the brain and he too was hospitalized and he also had right side weakness. We were in the hospital for 3 week on three different antibiotics and I am happy to say we are now home doing well. Still on antibiotics but doing well. So I have hopes your son will do very well. I will pray for you Nelson and your son.
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Re: MRSA in the Brain
Reply #15 by Sharlie
Posted: September 20, 2013 at 08:42
I had the worst headache of my life. I went to the hospital and they did a CT scan. They ended up life flighting me to another state for emergency brain surgery. I have 26 staples in my head. Because I was an i.v. drug user in the past; they won't let me have a pic-line for antibiotics. I have to take pills and will have a follow up CT scan in a month.
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Re: MRSA in the Brain
Reply #16 by Brie
Posted: September 28, 2013 at 20:14
I thought I had a lot of problems with two brain surgeries but this is truly AWFUL! I am soo sad for all the suffering out there (for all of us). I pray for a way to raise money to find cures and make all this something of the past.
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Re: MRSA in the Brain
Reply #17 by danielle
Posted: October 12, 2013 at 03:10
mrsa can affect the brain, or cause brain inflammation and other toxins blocking brain receptors. so it can even cause dementia and psychiatric type of symptoms.

I know when I got sick from mrsa it went everywhere and to the brain because one day I couldn't think anymore and I was not myself, I was getting confused and my personality changed and I began to get mood swings and manic episodes. and I became psychotic and delirous too at times and seizures. I also was getting these strange delusions I was having schitzophrenia and bipolar symptoms. and dementia symptoms wandering off getting lost and confused.

all out of nowhere and suddenly within weeks after I got sick from mrsa. mrsa toxins do have an affect on the brain.

like have you ever heard of that book by the new York post reporter Susana cahalan? she describes in her book how she one day had a sudden confusion. and then her mental symptoms appeared over time.

and it turns out she had a rare type of encephalitis affecting her brain and her doctors almost commited her to the psych ward when in reality she was having encephalitis

when I read her symptoms I was like this was me, that's what I went through.

but psychiatric treatment cant help the delirium and things because its not the source of the issue, the source of the problem is infection.
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Re: MRSA in the Brain
Reply #18 by Matthew
Posted: March 2, 2014 at 19:56
I went in for a right temporal lebectamy to correct my epilepsy and came out with
Mrsa. The doctors and nurses keep blowing me off when I would tell them I had a
lot of pressure in my head. The doctor just wanted to give me more pain meds. I
was telling him I don't won't more meds I want the pain to go away and he blew
me off. After a couple days my face swelled up like I had elephant mans disease.
My wife called the doctor and told them my eyes are swollen shut, what should
we do. They said it was because I was sleeping laying down and to sleep siting
up so I did with no results. She called again and they told her I had an
appointment in a couple days they would see me then. So I went in and my nuro
surgen took one look at my head and said I have to rush you down for emergency
surgery. My heart stoped come to find out I had mersa in my brain had to be on
vancomycin till I had a bad reaction to that then they put me on dapomycin till it
went away had to see an affections disease doctor and everything. All because
they wouldn't listen when I told them something was wrong. All they wanted to do
is give me more pills.
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Re: MRSA in the Brain
Reply #19 by Matthew
Posted: March 2, 2014 at 19:57
I went in for a right temporal lebectamy to correct my epilepsy and came out with
Mrsa. The doctors and nurses keep blowing me off when I would tell them I had a
lot of pressure in my head. The doctor just wanted to give me more pain meds. I
was telling him I don't won't more meds I want the pain to go away and he blew
me off. After a couple days my face swelled up like I had elephant mans disease.
My wife called the doctor and told them my eyes are swollen shut, what should
we do. They said it was because I was sleeping laying down and to sleep siting
up so I did with no results. She called again and they told her I had an
appointment in a couple days they would see me then. So I went in and my nuro
surgen took one look at my head and said I have to rush you down for emergency
surgery. My heart stoped come to find out I had mersa in my brain had to be on
vancomycin till I had a bad reaction to that then they put me on dapomycin till it
went away had to see an affections disease doctor and everything. All because
they wouldn't listen when I told them something was wrong. All they wanted to do
is give me more pills.
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